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8017
§ 4.124a Schedule of ratings—neurological conditions and convulsive disorders.

ALS (amyotrophic lateral sclerosis)

A progressive disease affecting nerve cells in the brain and spinal cord that causes muscle weakness and loss of movement.

What the rating means

Amyotrophic lateral sclerosis (ALS) is rated under diagnostic code 8017 in the schedule of neurological conditions and convulsive disorders. VA rates this condition at 100%. There is only one rating level — no lower percentages apply. Because ALS is assigned a permanent 100% rating, VA also directs that the need for special monthly compensation be considered. Special monthly compensation is a separate benefit available when a Veteran's disabilities involve specific losses or needs beyond what the basic rating covers. The regulation does not describe varying levels of severity or different criteria for reaching the 100% rating — the diagnosis itself establishes the rating.

Evidence that helps

Because ALS carries a single 100% rating tied to the diagnosis itself, the most important evidence is medical documentation confirming the diagnosis. Records from a neurologist or other treating physician that establish the ALS diagnosis are central to a claim. This includes clinical notes, nerve conduction studies, electromyography (EMG) results, or other diagnostic testing that your doctors used to reach the diagnosis. Records showing the progression of symptoms — such as muscle weakness, difficulty speaking or swallowing, or respiratory changes — can support the picture of the condition over time. Because the regulation also directs VA to consider special monthly compensation, statements from you or your caregivers describing the level of assistance you need for daily activities may be relevant to that separate determination.

Secondary conditions

Conditions that are often caused or made worse by this one. If you have any of these, they may be claimable as secondary service connection.