Rare disorder causing skin blistering, liver issues due to porphyrin buildup
Medical records documenting the extent of your skin lesions are central to this rating. Exam findings or photographs that show what percentage of your entire body surface or exposed skin areas are affected help establish which threshold — less than 5 percent, 5 to 20 percent, 20 to 40 percent, or more than 40 percent — applies to you.
Treatment records are equally important. Prescription records, pharmacy logs, and physician notes showing what medications you were prescribed and for how long support the treatment-based criteria. Records should reflect whether systemic therapy — such as oral corticosteroids, retinoids, immunosuppressive drugs, or phototherapy — was required constantly, for 6 weeks or more, for less than 6 weeks, or not at all during the past 12 months. Records showing that only topical treatments were used support the 0% level.
If you have had complications affecting your eyes, mouth, gastrointestinal tract, respiratory system, or genitourinary tract due to mucosal involvement, separate medical documentation of those conditions supports a separate rating for each. Statements from you or people who know you describing how skin symptoms affect your daily activities may also help a VA examiner understand the full picture of your condition.
Conditions that are often caused or made worse by this one. If you have any of these, they may be claimable as secondary service connection.